Feb 5, 2020
Living Your Life with Purpose with Jodi O’Donnell-Ames
Amyotrophic Lateral Sclerosis (ALS), or Lou Gehrig’s Disease, is a neurological disease that takes a heavy toll on those who are diagnosed with it, as well as their families. Jodi O’Donnell-Ames came to understand how difficult it was when her husband was diagnosed with ALS. As Jodi cared for both her husband and her 2-year-old daughter, she found that there was a serious lack of resources for children whose parents were diagnosed with ALS. When her husband, Kevin, died in 2001, Jodi knew that she had to keep fighting, so she served as director of communications for the ALS Hope Foundation in Philadelphia from 2001–2003. While working there, she met Warren Benton Ames, whose wife Tina had passed away from ALS in 2000. Warren and Jodi married in 2003, and she became the mother of Ames’ two children. Inspired by the strength of their united family, this led her to found Hope Loves Company, the only non-profit organization in the country dedicated to providing education and emotional support for children and young adults who had or have a loved one battling ALS.
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